13个小东西可以帮助您通过强直性脊柱炎

什么时候ankylosing spondylitis耀斑，它可以使您的正常生活停滞不前，也可以接近它。背部，颈部和其他地方的灼痛和僵硬都会在身体和情感上造成巨大的伤害。

每个人患有强直性脊柱炎的经历都是独一无二的，因此可以使您的缓解措施进行零，这可能需要一些侦探工作。德拉莫I. Bekele，医学博士， 一种rheumatologist在明尼苏达州罗切斯特的梅奥诊所。他说：“对一个人有用的东西可能对他人不起作用。”因此，采取试验方法是很明智的。但是收益可能是巨大的。

Dr. Bekele’s “prescription” for people with this inflammatory type of arthritis: “Be open to just trying things until you hit the spot for your kind of pain.” And then prepare yourself, with the right equipment and tools at home, to bring the idea to fruition.

Here’s a list of 13 little things that two women with ankylosing spondylitis have found helpful for handling the physical and emotional耀斑的影响。有些人也可能只是为您工作。

1.尝试一个抓刀工具。During an ankylosing spondylitis flare, bending over or down to pick up a toy or pillow or anything else can be torture. These are moments when Lisa Marie Basile, a 34-year-old healthcare journalist in New York City who was diagnosed with ankylosing spondylitis in 2017, is glad to have her Nifty Nabber. Variations abound, but the concept is simple: a stick with a clip at the end that you can pick things up with. “It seems really silly,” says Basile, “but sometimes it’s just impossible to bend over much.” This handy tool makes the movement unnecessary.

2. Use a backrest.Rest is key during a flare, but who wants to spend every waking hour flat on their back? During flares, Steff Di Pardo, a 25-year-old health writer who lives near Toronto, solves this problem by putting her soft yet sturdy Husband Pillow to work. The contraption allows her to sit up comfortably in bed, with firm support for her arms and back. “It helps a lot,” she says, and she uses it often.

3.小工具。巴西莱（Basile）怀疑其他人在耀斑期间患有更严重的手疼痛，但这并不意味着她不感激聪明的开瓶器和other devicesin her kitchen drawers that can help her twist, pull, and otherwise manipulate tight lids, tops, you name it. Struggling to open an item when you have pain or weakness in your hands can be frustrating, painful, and humiliating. You can search through the dozens of arthritis assistive devices available online and through advocacy websites such asCreakyJoints.org。

4. Patch the pain.卡住sitting in a caror airplane seat during a flare? Basile says placing a cooling pain-relief patch on her back (or another sore area) can be “pretty amazing. It can really help take the edge off the pain from being immobile for so long.” She says it also helps her move more freely when she finally does get up. Mid-flare, “I constantly have [patches] with me,” she says. “If I wake up with spasms, it’s like the holy grail.” In addition to patches, cooling pain-relief products come in gel, spray, and foam formulations. They start to deliver relief within two to three minutes, Basile says.

5. Experiment with heat.对于Di Pardo来说，热量比冷却更多。她说：“如果我很痛苦，加热垫或热包就像我最好的朋友一样。”区别在于另一个例子是如何以一种非常个人的方式体验耀斑，而反复试验可以为您带来最佳解决方案。

6.坐在你的淋浴。“感觉就像祖父母会有的东西，”她在耀斑期间放在淋浴中放在淋浴中的塑料椅子上说。“但是有时候这就像世界上最好的事情，因为当您陷入这么多痛苦的时候，[通过淋浴]站起来是不可能的。”耀斑过去了，她将椅子藏在壁橱里，看不见。但是她知道在哪里可以找到它的最早的耀斑标志。您可以在网上和园艺供应商店找到一个轻巧但坚固且耐锈蚀的淋浴椅。

7.,在你的浴室。The little stool Di Pardo keeps in her bathroom gets extra use when she’s in a flare. She uses it to “kneel or sit on while I brush my teeth, wash my face, and do all that. And If I’m too tired, I’ll just pull that up and sit on it in front of the sink. It really helps.”

8. … and in your kitchen.迪·帕多（Di Pardo）说：“像我厨房里的高凳子这样的小东西使得（在耀斑期间）变得容易得多。”他们帮助她离开脚，使她不必在切割东西或在炉子上做饭时站起来。但是，理想的粪便高度很重要，因此请考虑一下什么尺寸适合倾斜和坐在上面。

9. Have an eye mask handy.在耀斑期间对光的敏感？当Basile在耀斑期间经历光敏性和疼痛时，她就会戴上眼罩。“这似乎是如此的戏剧性，但是当我处于这种爆发状态时，光线很痛苦，因此面具是必备的。”在过去的耀斑中，当她没有口罩时，她曾经将头埋在T恤上，以挡住灯光或躲在浴室中，在那里她可以使它变得黑色。这些天，她经常使用口罩稍加一会儿，而她等待止痛药的作用。

10. Use a walker if it helps — wheels recommended.步行的想法可能在强直性脊柱炎的过程中令人生畏，因为由于虚弱，疼痛和僵硬而落下的风险也可能会降低。迪·帕多（Di Pardo）有一次使用拐杖，但她现在用轮子和座位将步行者视为“天哪”。紧紧抓住沃克，即使她真的很累，她也会感到安全地走动。“我发现它比[拐杖]提供了更多的稳定性，而且[因为它是滚动类型]，所以我要做的就是推动。”没有必要的提升。当她需要喘口气时，她甚至可以坐在上面。下一步：使步行者在年轻人中命运的步行者感到羞耻。

11.分散自己的注意力。不管你的注意力从一个强直性spondylitis flare — funny videos, feel-good movies, online games — is worth a try when pain ramps up and threatens to overwhelm you. “Distraction is a huge factor,” says Di Pardo. “If I’m in a lot of pain, I want to watch something that I find funny or entertaining just to get my mind off of that pain for a little bit.” She turns to the video-game streaming site Twitch to get her mind off things.

12. Connect with the online community.Basile and Di Pardo both turn to social media sites for everything from comfort and validation to well-being and survival tips. “I would highly recommend turning to the community in times of distress,” says Basile, who uses forums on Facebook and websites such as Health Union. “People in those forums have helped me get through my flare-ups more than anything,” she says, adding that it’s important to remember that other people’s experiences don’t mirror yours exactly. “If someone is suffering,” Basile says, “it doesn’t necessarily indicate your entire life or future will be that way.” Since ankylosing spondylitis is often invisible to others, Basile says the validation she finds on these sites makes a big difference. “You may feel a level 9 pain,” she explains, “but you’re not limping, so people like your spouse or friends can be a little invalidating.”

13.在Instagram上伸出援手。Di Pardo favors connecting through Instagram. She uses hashtags to find people — and to be found. “It’s a massive support system,” she explains. “I’ll help people out if they message me, and they’ll help me out.” With people on Instagram channels all over the world, time differences evaporate and connections can happen in the middle of the night, which is sometimes when they’re very much needed.

Bekele says, “Keeping track of what your typical flare looks like, and being prepared for them,” is important for several reasons. If you start to see patterns and pick up on an impending flare at its early stages, for example, you can notify your doctor and perhaps adjust yourtreatment- 甚至实施了可能有所帮助的一些小措施。