12 Popular MS Blogs to Check Out in 2021

Is it possible to keep a positive attitude when you’re constantly fatigued? How about if you occasionally wet the bed?

Withmultiple sclerosis (MS)，身体症状可能从麻木和刺痛到视力问题，膀胱功能障碍，平衡问题，头晕等等。但是没有适用于所有人的症状模式。MS对每个人的影响都不同。

不过，每个人都可以与MS有关的一件事是，条件的不可预测性使您有一天会感觉良好，而下一个情况下的背部则平整。

Figuring out how best to live with this incurable disease and the challenges it throws in your path can be overwhelming if you try to do it alone. So why not make resources of otherpeople with MSwho know exactly what you’re going through? You can find a lot of those people on the internet — blogging, creating podcasts, and sometimes even posting a video or two.

In our favoriteMS博客您会发现许多令人振奋的角色，残酷的诚实，新的经历，挫败感，成功，高潮和低谷。

Regardless of where they come from and what they do now, all these bloggers provide advice, encouragement, and a no-frills look at what life is really like when you’re living with MS.

1.可访问的Rach

When Rachael Tomlinson was diagnosed with primary-progressive MS at age 51, shedecided to pursue her dream of becoming a writer, aiming to prove that living with MS “shouldn’t have to be an uphill struggle.” In her writings, the UK-based blogger broaches topics ranging from disability and accessibility to plus-size fashion and beauty. Check out her blog posts onliving with irritable bowel syndrome in addition to MS, dealing withimpostor syndromeas someone with a chronic illness, andwhy it’s okay to not be okay。A self-described patient advocate, Rachael has also written for咆哮的女孩和慢性病博客作者， 和you can find her onInstagram， 也。

2. MS Bites

A registered dietitian nutritionist and certified MS specialist who began her career advising patients with cancer, Mona Bostick shifted to working with the MS community after beingdiagnosed with relapsing-remitting MS in 2008。On her blog,MS Bites, Mona works to keep “Dr. Google” in check and regularly busts饮食是这种情况的“神奇子弹”的神话。She addresses commonly asked questions like, “Have you tried this diet for MS?“ 和 ”Will turmeric supplements really help people with MS?”

3. Tripping on Air

Ardra Shephard’s generous use of profanity and friendly, conversational writing style make绊倒感觉就像和朋友聊天。她热闹的帖子讨论了MS的日常挣扎，how MS can mess with your mojo, or having to admit to her husband (“The Banker”) thatshe wet the bed, or感染流感在纽约市的精美生日晚餐中。她还谈论了“come out” to her friends about having MS。Ardra的博客是坦率而迷人的，是您任何下降日的完美补救措施。

4. Dinosaurs, Donkeys, and MS

希瑟（Heather）使她的故事成为毅力和积极性。她和她的钩针驴伴侣Dizzy（以她的症状之一的名字命名），通过她与MS编年史blog posts和the occasional头晕。This charming blog highlights Heather’s daily adventures with Dizzy (such as在野生动物医院志愿服务或者练习驴瑜伽) as well her使MS生活更轻松的技巧或者保持大脑健康。Don’t miss her helpful and reassuring articles onhow to cope with an MS diagnosis和how to make MS injections less scary。

5.授权的精神

正如标题所暗示的那样，凯茜·切斯特（Cathy Chester）的博客着重于对患有慢性疾病的人的赋权和鼓励 - 因为，她说：“尽管她有MS，但MS没有她。”她于1986年被诊断出患有MS，旨在帮助读者感到“比[她]被诊断出[]时（她）所做的“孤独，孤立和不知所措””，并向他们保证，这条路“当我们一起旅行时，这条路的颠簸程度要小得多”。An Empowered Spirit讨论凯茜自己的生活和兴趣，还提供最新的医疗新闻，以使您获得积极健康的生活。2020年12月，凯茜谈到在充满挑战的一年之后放手并前进。She’s also written for Everyday Health before — be sure to check out the story of her experiences ingrieving for the losses that accompany MS。

6. Ireland, Multiple Sclerosis & Me

威尔克·范·埃克霍特（Willeke van EeckhoutteIreland, Multiple Sclerosis & Me。一次，when retrieving the results of an MRI scan，她被要求介绍一个照片ID，她巧妙地回答说：“不是一个MRI, a picture of my brain, photo ID?” But she’s not afraid to take a more serious tone when necessary — such as这封信给媒体, which laments sensationalist headlines promising a cure for MS. Still, her posts consistently end on a happy note. Make sure you check out her helpfullist of mental health resources for coping with the COVID-19 pandemic。

7. It’s a S--- Business

The title of this blog offers a clue to the tone of Steve Woodward’s long-running series of thoughts on his experiences living with MS. Frank, irreverent, and conversational, It’s a S--- Business is an unfiltered look at Steve’s day-to-day life — from what he calls “MS药物轮盘赌”非常真实的现象wheelchair envy(upon discovering the price of one particularly flashy model, he warns readers not to be surprised if he “reinvent[s himself] as an Instagram or YouTube influencer in the forthcoming months”). He’s also not afraid to tackle some of the more serious issues for those living with MS — check out his posts onfeeling “like a (literal) burden”when his family members had to push his wheelchair, or “that’s not MY MS...”, in which he muses on a tendency to “live entirely through the filter of their illness” among members of the MS community.

8. My New Normals

Despite the challenges she has faced with MS, includinglearning to love the body that has let her down, Nicole Lemelle is an upbeat writer who aims to educate, reassure, and inspire her readers in all things MS. Those who come toMy New Normalsappreciate her candor and positive attitude, especially when things aren’t going as they should. Like when, for instance,you get so desperate you start believing in spam emails，或当您迟到预约时running on “MS time.”Her posts touch the very fibers of how MS can really change you, and she clearly touches a nerve in her readers; one of her most popular posts, titled "I Hate，“获得200多个评论！her symptoms意味着她的博客的更新不像以前那样频繁，但她的网站仍在托管数十个以前的帖子中，您可以跟上她的步伐Twitter或者Instagram。

RELATED:Holiday Gift Guide for People With MS

9. Yvonne deSousa.com

如果您正在寻找一个关于MS的有趣博客，那就无所作为yvonne desousa.com。Yvonne’s posts are full of hilarious anecdotes about her daily trials with the illness, and she can find humor in any situation — frommistaking “slipper fuzzies” for ants，疲劳laundry day， 和even herJanuary 2019 cancer diagnosis(in a post entitled “About a Boob”), as well as her experience withreconstructive surgery after breast cancer。She’s a published author, and you can order her book,疯狂女士, on Amazon.

10. A Life Less Traveled …

At age 31, Michael Wentink was living the dream. He and his wife had just had their first child, he had recently graduated from his MBA program, and he was the director of a Fortune 500 company. Then he was diagnosed with MS. Although he worked for as long as he could, eventually his position as an executive became too overwhelming. He then medically retired and took on his current role as a writer and podcaster living with MS. Today he makes sure to cherish life by “living each day with love, purpose, and passion,” especiallywhen his children started to notice his symptoms。Along withA Life Less Traveled ..., Michael is also a contributor toThe Mighty(check out his posts about thedifficulty of medical retirement和living with MS during COVID-19), and he’s appeared on the禁用启用podcasthosted by Jessie Ace.

RELATED:How MS Contributes to Isolation and What You Can Do to Stay Connected

11.用小数进行思考

Edith Solenne Monk was diagnosed with MS at 16 — and “as much as I hate that being my opening line,”she says, “it’s become a big part of my life.” It’s also a big part of her blog,Think in Decimals，她自2015年以来一直在写作。她是一个狂热的旅行者，并描述了前往的旅行Canada,特兰西瓦尼亚， 和the Alps, among others. (Her favorite part of New York City? The “lovely, accessible, concrete" pavementsfor wheelchair users.) She also does a lot of campaigning to draw awareness to the struggles faced by those living with disabilities, whether it’s工作场所歧视或者issues with the social care system。Eloquent and inspiring, Edith’s blog is a must-read.

12. Ashley’s Life With Multiple Sclerosis

22岁那年，有一个丈夫和两个儿子，刚刚完成学业，阿什利·林斯塔夫（Ashley Ringstaff）被诊断出患有MS（好像她的盘子里没有足够的时间）。但是她的博客证明了如果您愿意挑战慢性疾病，您可以走多远。如果您觉得MS接管了您的生活，请看一下her post on what you can dowith the illness (naturally, written in response to hearing about all the things she supposedly can’t do). She talks aboutlosing friends并对家人愤怒，她被诊断为MS的10周年， 和how to find yourself post-diagnosis。Though she’s no longer as active onAshley’s Life With Multiple Sclerosis, you can find her posts at多重硬化，以及许多其他鼓舞人心的贡献者谁与MS一起生活的故事。

Additional reporting by劳拉·麦克德尔（Laura McArdle）和克里斯蒂娜·沃格特（Christina Vogt）。